The TRPSA is a national and international support network for people with Trichorhinophalangeal Syndrome; a skeletal disorder. People with TRPS suffer more than physical challenges; they often encounter discrimination and ridicule. We offer understanding, friendship and information. We recommend learning all you can about TRPS; this enables you to be your own best advocate.
Part of our mission is to promote TRPS awareness within medical communities and develop a treatment protocol. If you or a loved one has TRPS; you’ve come to the right place. You’re not alone anymore. Through this group, and with the help of researchers we now have much more information about TRPS management.
With each new member we learn more. If you have a TRPS diagnosis, please join and share your experiences with us. (Disclaimer: The range of symptoms experienced by members varies greatly.) We recommend medical decisions be between you and your doctor. Treating physicians are welcome.
Membership is carefully screened and approved by the group moderator only. Insurance agents or curiosity seekers aren’t allowed to join due to privacy and rules of the group. Harvesting email addresses is forbidden; anyone doing so will be banned. We’ve worked hard to create a very private, secure website to protect our members. Content on this list comes from a multitude of resources and represents many years of research.
Copyright ©2003 all material is the intellectual property of Trichorhinophalangeal Syndrome Association a.k.a TRPSA. All rights reserved.